I've been wanting to do a day in the life of Caleigh for some time now. I finally got inspiration from Ellie's parents when they blogged about Feeding Gut Girl.
Back when Caleigh was getting over 24 doses of medicines a day I didn't even have time to think about journaling our day. We barely made it day by day and just keeping Caleigh's schedule back then was good enough. Now that things are going so well and have calmed down a bit I have time to breathe and think about what we really do on a daily basis.
It all starts at 6:30 or 7:00am, Caleigh wakes up. We get up, turn off the Apnea Monitor, change her diaper (that inevitably leaked everywhere), proceed to change all the bed sheets and strip her down to her new fresh diaper. We give Caleigh's seizure med, Keppra, & Ursodiol, liver med, through her g-button about 7:30.
Caleigh plays on the floor while we work on waking up, coffee or green tea is a must at this point.
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Caleigh's Corner is a guest blogger for Bridges.