Showing posts with label pregnancy loss. Show all posts
Showing posts with label pregnancy loss. Show all posts

Thursday, November 13, 2008

A Lack of Compassion

I wanted to respond to one of the comments on the post about my first visit with the RE. I was stunned by the truth in her statement:
The angry part of me is that we feel surprised by being treated as human beings. So often in this world of infertility, miscarriage, and treatment, we are made to feel responsible, to feel like a patient, and to feel as though we are wasting others' time. Your experience should be the norm, not the exception.
I have to admit that I feel a little stupid that this didn't occur to me before. I have had some terrible experiences with doctors and medical professionals in connection with my three miscarriages. When that RE walked into the room and was so honest and compassionate and recognized what we've been through instead of skirting around it, I was just amazed and so glad that we found a doctor who really seemed to care and understand. I didn't even think about the fact that the care I received should be normal, not a rare event and cause for celebration. Sadly there are other women going through losses and infertility who do not have the support of a caring medical professional, at least not one that treats them as a human being instead of another medical puzzle or an insignificant patient.

Click here to continue reading...

Aurelia is the contributing editor for Early Pregnancy Loss. She writes daily at Aurelia Ann. She provides "thoughts-written-out-loud" in words and pictures.

Wednesday, November 5, 2008

Lost Versus Lost

A heartfelt thank you to all who commented, gave me suggestions and offered to help us deal with this mess.

By way of clarification, I wanted to note that the Doodles aren't definitively lost, via administrative snafu or otherwise (as far as we know). Rather, they are simply subject to the same horrific standard operating procedures as everyone else's babies. This isn't a terrible mistake that happened to us or them - as far as we know, nothing is "out of the ordinary" with respect to their burial. It's just that "ordinary" is, for lack of a more eloquent description, royally fucked up.

So, it's not just our Doodles that are in dead baby limbo right now - it's the babies of anyone who made the grave mistake of choosing option C at a time when they weren't in their right minds to be making any decisions, and went with the "hospital burial" scenario. I spoke again to our contact at the hospital and she said it used to be that she could call someone at the medical examiner and they would check the records and tell her that Baby X had or had not been buried at the cemetery (in the mass grave, there aren't individual graves) as of X date. However, due to understaffing and backlog at the examiner's office, they are no longer able to provide such confirmation with respect to these babies - I'm sure it would be different if the Doodles had names, a mortician, a funeral date. But they don't. And they have their parents to thank for that.

Click here to continue reading...

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

Sunday, November 2, 2008

How Are You Doing?

I am so freaking tired of this question. I realize that this question is like second nature to most people. It comes out in unison with "Hello" most of the time. I just wish that people would realize what goes on in my mind when you as ME this. I'm different than most people that you come in contact with during a normal day. Most people that I talk to realize that I'm different, but they just can't get through this automatic question...

I'm different though...wow, that's an understatement these days. When you ask this, I go through a chain of questions in my head. "How do you think I'm doing?"..."Do you really care or are you asking to be nice?"..."If you really care, then you would already know how I'm doing!"..."I don't know, how am I suppose to be doing today?"

Click here to continue reading...


The Chronicles of an Incompetent Cervix
is a guest blogger for Bridges.

Thursday, October 30, 2008

Recurrent Pregnancy Loss Update

It’s hard to believe that it’s nearly a year since my first loss and only 4-1/2 months since my last loss. But I am starting to put the pieces together. Here’s the list of causes my Reproductive Endocrinologist outlined for me at my early June visit as well as my status in each of these areas. I hope this may help others who have experienced multiple losses advocate for the help they need.

INFECTION
Yeah, it really stinks to think that I could have lost babies due to low-grade infection, but it is possible. The RE recommends that I do a round of antibiotics during early pregnancy.

IMMUNOLOGICAL PROBLEMS
This category refers to things like clotting disorders, immuno-deficiency illnesses, and the like that can and do contribute to primary and secondary infertility. When clear immunological problems are not identified through extensive blood testing, doctors seem to recommend taking a baby aspirin (81 mg) a day as a possible protective measure. My bloodwork came back just fine and dandy!

Click here to continue reading...

The Trial of Labor is a guest blogger for Bridges.

Tuesday, October 28, 2008

How it Was

(this is not fiction. Oh, how I wish this were fiction)

Friday, 6:15am. My son is asleep beside me. Downstairs I hear my husband getting ready to leave for work. I get up to pee. The toilet paper comes away with blood. I’m five weeks pregnant. I decide that this is not happening. A smear of blood, and a small gray bump. Something gray. Spotting. And something gray. I focus on the spotting. I decide I didn’t see something gray. Flush it down.

More blood. Bright red.

Click here to continue reading...

Dispatches from Utopia is a guest blogger for Bridges.

Thursday, October 23, 2008

So You Know Someone Who Had a Miscarriage

A few days ago I was asked in the comments to talk more about what people can do or say when someone they know experiences a miscarriage or a similar situation. It has been really hard for me to answer that question because I know that ultimately I can only speak for myself. While so many of us share the same thread of miscarriage in our lives, we all deal with the experience differently. Some things that were comforting or helpful to me might be painful for another person. I know I've had people share quotes with me that they found comforting and it only made me want to gag, cry, and scream in an everlasting rotation.

So with that in mind, here I go: What to do when someone you know experiences a miscarriage...

Click here to continue reading...

Aurelia is the contributing editor for Early Pregnancy Loss. She writes daily at Aurelia Ann. She provides "thoughts-written-out-loud" in words and pictures.

Tuesday, October 21, 2008

To Tell You About Hannah

Is to tell you about the loss of innocence, mine. The innocent ideal that once pg, nine months = baby, the naivete that there is any "safe" point.

Hannah was my second loss. My first one had been so early and so unexpected, I dealt with things somewhat pragmatically. I didn't entertain the thought it would happen again - these things happen. That was what they told me - and at this point in my life, it was easy to believe them. I was told to "get pg again right away - all would be okay" and while my heart ached, I still believed them. Something so sad, so wrong, could not possibly happen again - could it?

I was elated, though hesitant at first. We did the things we had to do to conceive - the charting, the clomid, the timing and we succeeded. I held the secret close - not wishing to tempt fate, waiting to pass the "safe point". And then I was past that and I felt more secure and I divulged my secret, not thinking that I shouldn't, not thinking that all was not going as it should, or wouldn't. I believed, I hoped, I had that confidence that only comes from not knowing otherwise.

Click here to continue reading...

Julia is the contributing editor for Recurrent Pregnancy Loss. She writes daily at Life After Infertility and Loss where she covers all of her children--the ones who are here and the ones who are gone.

Tuesday, October 7, 2008

Life is a Battlefield

Minefield, actually. This is how I have come to view the little triggers that can take me from zero to hysterical in 2 seconds. They are landmines, hidden dangers that I don't realize are there until they've triggered some memory of my pregnancy or the Doodles, and I realize I am crying. The worst part is that they are inescapable because they are everywhere. I was pregnant for so long that there are very few places I didn't go when pregnant, very few things I didn't do when pregnant, and so going those places now or doing those things now simply bring up thoughts of "last time I did this/was here I was pregnant." The things I didn't do while pregnant simply remind me that "I haven't done this in 7 months because I was pregnant."

Take this weekend. We had tickets to see Sweeney Todd (the stage production, not the recent movie) which I'd bought back in February. Thinking of the show reminded me that I'd purchased matinee seats intentionally because I thought I'd be 28 weeks pregnant and wouldn't have the energy for an evening performance. I didn't want to go to the show because I was reminded that last time we'd gone to the theatre (to see Jersey Boys) was the first time I'd clearly felt both Doodles move, and I had been so elated afterwards. After the show I was craving a steakhouse cheeseburger so we went to eat at the restaurant in the lobby of my office (since we'd parked at my office). As soon as we were seated my mind filled with memories of eating lunch with DH at that same restaurant right after we'd received our first positive beta, how excited we were to finally be pregnant. I also looked at the bar and remembered sitting there with clients just 5 or so weeks ago, how proud I felt to not be able to drink because I was pregnant, how happy it made me for people to notice and comment on my belly.

Click here to continue reading...


Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

Wednesday, October 1, 2008

Grief

It comes unexpectedly. A few days ago I was moody, irritable, snapping at everyone for no reason--and then I realized that it had been exactly four weeks since we lost Lucky. No wonder I was feeling that way. It is like the grief and sadness can eat away at you from the inside even while you are completely unaware of it.

The next day I got my first post-miscarriage period. Damn. There is nothing like menstruation to remind you that you are not pregnant. Nothing like cramps and headaches to be a dull reminder of what you have lost and what you don't have and to make you feel simply crappy all the way around.

Click here to continue reading...

Aurelia is the contributing editor for Early Pregnancy Loss. She writes daily at Aurelia Ann. She provides "thoughts-written-out-loud" in words and pictures.

Sunday, September 21, 2008

Sad Day

While mommys and daddys all over the world were picking their kids up from daycare, preschool, camp...we were picking up our children for the first and last time. We will never get to pick them up from daycare, from school...from a friends house. We picked our children up from the funeral home. They didn't need a car seat. They sat on my lap in a box.

I thought we would just walk in and they would hand us a box. "Our" guy wasn't in, but the guy who met us at the door who knew we were. We didn't call beforehand...we just must have that "parent of dead babies" look. Apparently this was the guy who did the cremation.

I was crying before he came into the room. Just looking at that box and knowing what was inside broke my heart all over again. He showed us the urn and said that he had not sealed it, as he didn't know our plans. He took off the little top, and there was a ring of dust. Except it wasn't dust. We told him we wanted it sealed.

Click here to continue reading...

No Swimmers... is a guest blogger for Bridges.

Tuesday, September 16, 2008

Tread Softly, For You Tread on My Dreams

I have been pregnant thirteen times.

No, I don’t have thirteen children.

Seven of my pregnancies ended way before they were supposed to. Before my belly got large; before I really could feel them moving inside of me; before other people knew.

Nobody else saw my babies, but they saw my tears. They didn’t understand. They told me it was better I wasn’t further along. I was told that my babies weren’t really babies – just a blob of tissue and stuff. They said just get pregnant again. They didn’t see my heart was aching – they held it in their hands and squeezed it tighter – closed their fists around it and squeezed so hard it ran through their fingers and didn’t realize it. They told me at least I already had a child.

When I kept having miscarriages they said why don’t you just stop? Why don’t you just count your blessings? Maybe this is G-d’s way of telling you that you weren’t meant to have more children. Then they said I must be really strong - because this was happening to me, or because they thought I needed to buck it up, I often wondered.

Click here to continue reading...

Julia is the contributing editor for Recurrent Pregnancy Loss. She writes daily at Life After Infertility and Loss where she covers all of her children--the ones who are here and the ones who are gone.

Julia S's Story

Julia is the contributing editor for Early Pregnancy Loss. She writes daily at Life After Infertility and Loss where she covers all of her children--the ones who are here and the ones who are gone.

Who am I? Good question - I ask myself this every time I see myself in the mirror. I guess you could say I am "middle aged" - 40 in November. Though - I certainly don't think middle aged. Born the oldest of a Marine Corps helicopter pilot and his creative, slightly hippie, Liberal Arts major wife; oldest of 8. I sing, I sew - read like I can't get enough words.

I got married in 1992 and we both wanted a big and quick family. The big we got - the quick, not so much. A little annovulation and a low sperm count landed us in the doctor's office after a year of ttc with no joy. Some clomid, BBT charting and well timed intercourse later we achieved our first pregnancy. Delivered a live baby at 39 weeks. Got pregnant again on Clomid a year later and promptly miscarried. Then I miscarried again. And again. Live baby. Miscarried again. And again. Lather, rinse, repeat. Seven miscarriages all by 12 weeks. The reasons are varied and not certain, some just suspected - blighted ovum, late implantation, ectopic-non-tubal, heterotopic (uterine and tubal pg), low progesterone, placental blood clot. The answers - not so clear. Been through much of the acronym gamut - TTC, BBT, FSH, TSH, ANA, SA, Lap, HSG, ad nauseum . . .

Somehow I ended up with 6 amazing children - they came with their own set of acronyms as well - BHcg, Prog, BA, LTCS, NICU, SCU, PICU, PPD, etc. . . and some scary moments (abrupting placenta previa anyone?), but somehow we pulled it off.

After 13 pregnancies it isn't clear whether I really suck at this pregnancy thing or not. At any rate - it is good I am not superstitious as I am no longer on active ttc duty. My particular brand of reproduction and endometriosis landed me at the door of another acronym -TAH, total abdominal hysterectomy, and I go under the knife once more in September '08 to remove my somewhat flaky uterus. The BBT has been retired and I am just trying to get on with life . . . after.

Monday, September 8, 2008

Passed Over

I had no idea it was Passover this weekend until my mom asked if we were going to do anything to observe. Needless to say, my answer was an emphatic "no". All of my expectations for every holiday in my future included us with the Doodles. If I can't celebrate them that way, I don't want to at all. I thought we'd have a wonderful Christmas (yes, we celebrate Christmas too) with two 6 month old babies, that they'd be playing with their cousins, opening their first presents. It would be too painful to try and have a holiday without that - it would just be a reminder of how different our life is from how it was supposed to be. I don't think I'll be able to normally celebrate another holiday until I am pregnant and/or have a baby. Not that another baby would replace the Doodles and make everything better, but it will give me something to focus on, to celebrate for, besides myself.

Click here to continue reading...

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

Thursday, August 28, 2008

One Thing I Learned From Miscarriage

Don't ask someone when they are going to have children (or another child for that matter).

I learned this a few days after my first miscarriage. We had flown home to see family and friends, a trip that had been planned for quite a while and was actually delayed for a few days because of my impending miscarriage (thank God we did not get on that plane as scheduled or I would have miscarried right around when my plane was landing in my hometown).

I was in the grocery store and a high school girl came over to say hi. I knew her from my days working with the youth group. We hugged, she asked how I was, how married life was, and then she started with the baby questions. So, are you going to have kids soon? When are you going to start having babies? You should have kids! My sister just had a baby, you should have a baby! She was happy and excited and she had absolutely no clue.

Click here to continue reading...

Aurelia is the contributing editor for Early Pregnancy Loss. She writes daily at Aurelia Ann. She provides "thoughts-written-out-loud" in words and pictures.

Aurelia's Story

It’s hard to know where to start. I am so much more than my losses, my pain, my grief. I am young, 26 years old, relatively newly married (4 years), and a stay at home mom. I’m a reader, a writer, a bit of a photographer, and I dabble in crafts like sewing and knitting. But I do have three lost babies and that is how I found my way here.

It started with my mom really. She had two miscarriages and I remember her telling me about them as a child. I always knew in some sense that being pregnant does not equal a baby in the end. A year into our marriage I found myself unexpectedly pregnant (yes, I am one of /those/ people), happy, excited, scared, and nervous. And two weeks later I wasn’t pregnant anymore. Everyone told me to try again, as if the loss of my first baby wasn’t important and there was no reason for me to worry about future babies.

I guess they were right, at first (although I worried anyway). Two months later I conceived my son (he’s 2 ½ now). I worried about losing him a lot in the early weeks, but my pregnancy was fine, no spotting, plenty of morning sickness well into the second trimester to confirm that I was indeed still pregnant. Nine months later I had a healthy baby boy in my arms.

When my baby was transitioning to toddlerhood I found myself pregnant again. I was scared, obsessively checking for spotting, agonizing over my lack of symptoms. I had my first appointment with my midwife at 10 weeks and later that day I started spotting. By the end of the week I was mother to two lost babies, one living. I started to wonder if something was wrong with me, but jumped into trying to conceive again anyway. I got my positive test just two cycles later. Instead of being happy and joyful and dreaming about this little one, pregnancy was full of constant anxiety. Just before I hit the twelve week mark I founds myself mother to three lost babies and one living child.

This time I demanded testing. My doctor told me there was no point because I had one healthy baby there was no reason I couldn’t have another--it was just bad luck. Try again, he said. I demanded the testing anyway. A few weeks later I found out I was compound heterozygous for MTHFR, a genetic blood clotting disorder that is linked to recurrent miscarriage. That’s where I am at now, a genetic mutant waiting to see a specialist and find more answers, hoping that there isn’t any more bad news about my body killing my babies, hoping that my next pregnancy won’t end with a lost baby.

Tuesday, August 12, 2008

Everything Counts in Larger Amounts

An original post for Bridges:

"They" tell you a lot after your babies die. They are the ones with experience, albeit rarely firsthand, on the matter. They are the counselors, the doctors, the "neonatal loss coordinators" (seriously), the authors of entire books on the subject. These are the dead baby experts.
They tell you that there are stages of grief and that you will likely go through them all, not necessarily in order (which begs the question why they even created the order). They tell you that it is not recommended to get pregnant again too soon. They describe the chances of a subsequent loss. They forecast how you may expect to feel, how your grief will change, lessen, over time. How babies, pregnancies, other reminders, may be painful (as if you needed a book to know this).

What they don't tell, however, is how much the things completely unrelated to loss, pregnancy and babies will hurt. They don't tell you how the most minor day to day disappointments will become magnified exponentially. They don't tell you that you are going to become a freak. They don't tell you that you can spend an entire day being normal, engaging in banter, functioning undetected in society, when a closed drive-thru will send you hurtling into an abyss of grief.

I have cried over traffic, I have bawled because my cat wouldn't snuggle with me, and I have refused to speak to DH for hours because he drove recklessly. I didn't used to be a mercurial person. One would think that suffering a tragedy such as the loss of a child (or two) would put life into perspective, perhaps lessen the impact of the smaller slights. It doesn't.

The other night, after a 12 hour workday, the one thing I was looking forward to was Taco Bell (don't judge - sometimes a little toxic cheese product just sounds too good). We got there and the drive thru was closed, so we went elsewhere. Thanks to delays and traffic it was another 20 minutes before we were home. DH sensed my disproportionate disappointment over the lack of chalupas, and told me that it wasn't that big of a deal. The next thing I knew I was prone on the bed, heaving sobs which I literally couldn't stop, no matter how hard I tried. Everything was just too much.It wasn't just the Taco Bell, although I'm sure in years to come DH will derive great pleasure telling people about the time I had a nervous breakdown because the drive-thru was closed.

It was (is) just everything, every extra hour I worked and didn't want to, every minute spent in traffic, every call that hadn't been returned. It's as if rather than putting things in perspective, losing our Doodles has thrown my gauges all out of whack - anything bad is very bad. A part of me is just screaming that it isn't fair, that I have already gone through losing my babies, I shouldn't have to deal with all this other crap on top of that, and so each minor inconvenience, disappointment, annoyance becomes another straw on the already severely injured camel's back.
So here I am, trying to nurse the camel back to health, and hoping someday it will be able to carry the load to which it had grown accustomed. I don't know how I'll do this, but I'm willing to give it a shot.

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

If this is your first time on this site, please see our comment policy.

Busted's Story

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

I used to have a blog - it was called "Turgid Prose." Some of my most memorable posts covered such diverse and important topics as how I thought Reba Mcintyre resembled a fraggle and why the Extra gum character in their commercials had a Scottish accent. I also had a sister site called "Primp My Ride" which covered beauty and fashion and my strong opinions with respect thereto. No one but my close friends and my husband read either one.

Eight months later without a period and several long weeks going back and forth from an RE's office, and I was feeling slightly less ironic, slightly less fashionista, slightly more in need of something real, something therapeutic, and so Busted Babymaker was born. I thought I was still being clever in my choice of a title, thought I was cute for dubbing myself "Busted". I wrote about IVF calendars, acupuncture appointments and being afraid of needles, but there was an edge of hope to the posts. All of a sudden strangers were reading, were cheering me on, and blogging became more than just entertainment.

When IVF#1 bestowed us with the jackpot of infertility, boy/girl twins, Phase III of my blogging career brought the cliched pregnancy blog. Baby names, nursery decor posts, showers - we had it all. There were some down moments, the abnormal genetic screening, the early threats of selective reduction (which happened naturally), but overall, despite all the requisite infertile woman's protests that this couldn't really be happening, we thought we were getting what we had always wanted.

March 25, 2008 inaugurated the current regime - pain central. On this day our sweet Doodles, Noah and Talia, were born too early at 23 weeks 3 days, and we lost them both. I now vacillate between (1) factual updates on my current medical situation (retained products, D&C, FET post-loss) when I can't think of anything to say other than "I miss my Doodles", and (2) long-winded laments, generally ending with "it's not fair." And suddenly so many readers have came out of the woodwork offering support and compassion, whether or not they can identify with our losses. So the idea of bringing awareness and emotional understanding through blogging is nothing new to me - but to create an entire space devoted to just that is definitely something new, and I'm honored to have been invited to be a part of it.

Oh yes, and I promise to do my best to reatin at least a sliver of that original irony and humor that used to be my bread and butter. If we can't laugh through the tears, what can we do?"