Showing posts with label Karen. Show all posts
Showing posts with label Karen. Show all posts

Tuesday, November 11, 2008

Here We Go Again

I haven't written about all the ups and downs, backs and forths, various changes we've made in the J-man's medications, because, really? What's the point? I'd just be writing the same post again and again. He'll take a new medication for 5, 6, 8, maybe even 10 or 12 days. And then, he'll start refusing to take it. And he'll lose privileges. His beloved Bionicles will go into the attic. His legos will be put away. His rights to use the computer will be taken away. And those threats will work for a day or two. Until they don't work anymore.

But this latest medicaton? Oh my gosh! It's been working so unbelievably well! I didn't realize how incredible life could be until we switched to it! Life was beautiful. But it was an extended release capsule that we had to open up and break into J's food... and, well, THAT didn't go over well. Because the capsule contained these little teeney tiny beads. And the beads... well, J's super-sensitive to food textures. And whenever he decides he doesn't like a food texture, he starts freaking out. So we were putting the beads in yogurt, or ice cream, or pudding, or applesauce. And that worked. For a while. And then we had to start disguising it by putting sprinkles in with the beads. And that really worked. For a while. And that stopped working. And nothing, and I mean NOTHING, was working.

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Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

Tuesday, October 7, 2008

Consumed

"Tell me, do you like working?" he asked, pointedly.
"Oh, heavens, no! I hate it!" I reacted immediately, without even thinking. "I mean," I recovered, "I used to. I like the idea of working. I'm good at it. Or I used to be. You know, it's my field. But then I had all these kids, and really, that wasn't even the tricky part, it's just that then all this with the J-man and all this coordinating and I'm pulled in all these directions. You know, sooner or later, something has to give. But I have to work. How else would I pay you?"

Where did that come from? There I was in the developmental pediatrician's office babbling as though I was at my own therapist's office. Not that I have a therapist. Maybe I should, but who has the time? But seriously, since when do I hate working? When did that happen, exactly? Who is this person that I've become?

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Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.



Monday, September 1, 2008

Medication Changes

We saw the developmental pediatrician today. We were going to spend about 10-15 minutes talking about medication and the rest talking about behaviour managment issues. That was the plan. But we've been trying to sort out the dose on the patch, and not been having QUITE as much success as we'd like, so we ended up spending the entire 50 minute session working out medication ideas.

Essentially, the patch is working really well. But not exactly the way we'd like. At the lowest dose the patch comes in, his hyperactivity/impulsivity was still not controlled quite enough. At the next dose (50% higher), his hyperactivity/impulsivity was totally under control, but he became melancholy, lethargic, disinterested, and sad. So we moved him to 1 1/4 patches of the lower dose, which is a pain in the neck, but doable. Unfortunately, we still saw the mood side-effects, though to a lesser degree, which is just not okay. It's very difficult, this balancing act. It breaks my heart. I don't want to lose my vivacious little boy who is so full of life and love and energy and hope and beauty.

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Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

Tuesday, August 5, 2008

The Normal Child

An original post for Bridges:

It wasn’t so long ago that I was parenting a “normal” 4 year old. A “normal” bouncing-off-walls, vroombunctious, difficult to control, impulsive 4 year old, which probably should have tipped me off, but the parent is always the last to know, right? The truth is, we knew for a long time that something wasn’t quite… as it should be. J is clearly very intelligent. But he has such a hard time focusing, such a hard time controlling his impulses, and such a hard time controlling his temper tantrums. Clearly he wasn’t any happier about any of these things than we were. Yet, time and again, school psychologists, county therapists, teachers would tell us “no, he’s fine! He doesn’t need any services at all! Sure, he may have some issues, but clearly he doesn’t qualify!”

And so time passed without J getting the help he needed. Other mothers looked at me disapprovingly in stores. Can’t she just control her child? they must have been thinking. Well, no. No I could not “just control my child.” You see, it doesn’t work that way. As it happens, I would later find out, AD/HD isn’t caused by bad parenting (though, it also turns out, AD/HD can lead to bad parenting). You can’t “fix” AD/HD just by disciplining your child. You can’t force him to control himself through sheer act of will. It doesn’t work that way. Control my child, indeed. We were so far from control, it wasn’t funny.

Finally, at the end of May, we walked into Dr. S’s office, desperate, really, for some answers. Were we overreacting? Were we just bad parents? Was it just “normal” to have this many temper tantrums? Is it “normal” to be this impulsive? Was it just “normal” to be a moving so much it was like he was driven by a motor that never stopped? I mean, what do I know? He’s the first four year old I’ve ever parented, right? And we told the doctor everything, provided him with all of our reports, assessments, surveys, etc. He went and assessed J in the classroom, evaluated J in his office, read all of our reports and a few days before we returned to his office, we received his report in the mail with those four little letters: AD/HD (combined type).

Amazingly, though we’d jokingly called him “ADHD boy” before, it had seriously never really occurred to me before. And here it was, staring me in the face. An answer. A diagnosis. Could it be? And here, laid out in this report, was a plan of action for addressing this diagnosis. A plan for moving forward. I was on cloud nine, which might not be what you expect when receiving a diagnosis like that for your child, but it’s where I was at the time. Finally, someone was telling me I wasn’t losing my mind! And when we finally walked into the doctor’s office to discuss the report and he said to us, “A child with J’s profile would make even the best parent in the universe feel incompetent,” I was relieved, because, BOY did I feel incompetent! But this doctor was going to help us find the answers.

And slowly, we are finding answers. Medication is helping. Behavior Management is helping. The two together are magical. It’s a slow process. We don’t expect miracles overnight. But our goal is to help J be the best, most functional person he can be. AD/HD isn’t just hyperactivity as so many believe it is. It’s a true disability and it affects all aspects of a person’s life and the lives of the people around them. It turns out, parents of children with AD/HD suffer levels of stress equal to that of parents whose children suffer from Autism, Down’s Syndrome, and other disorders. Children with AD/HD are ostracized by their peers, and the parents of children with AD/HD are often left to cope on their own because their friends don’t understand, and don’t want to deal with their on-the-go child who can’t control their impulses. After all, their friends wonder, why can’t you just control your child?

It wasn’t so long ago that I was parenting a “normal” child. A “normal” child who was bouncing off walls and who couldn’t control his impulses. A “normal” child for whose faults my bad parenting was blamed. Now, just a few short weeks later, I’m parenting a child with AD/HD. A child with special needs. He’s the same child, but now, now he’ll be able to get the help he needs. Those four little letters make all the difference in the world, don’t they?

Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

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Karen's Story

Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

A five-year veteran of infertility, Karen is the very lucky mother to a vroombunctious preschooler named J, and infant triplets: Sam, Ellie and Abby. While struggling with infertility, Karen and her husband were given the opportunity to take in a wonderful 13 month old boy, J, for “maybe a year, maybe more, maybe forever, we’re not really certain how long, but probably just a year.” Though Karen wasn’t sure how she would ever be able to give up a child after a year, she knew that if she couldn’t give a child a loving home for a year, who would? Four years later, J is still with Karen and is just as much a part of the family as if he had been born into the family. No legal document or biological tie would change that.

While parenting J and working full time, Karen and her husband continued to pursue fertility treatment, in hopes of expanding their family even more. Several years, many tests, 6 IUIs, and about $20K later, Karen found herself pregnant with triplets. Though she had long said that anything over twins was her doctor’s problem, she quickly became attached to the growing little monsters in her belly and she carried them to 33 weeks despite preterm labor starting at 17 weeks and a whole host of other issues. Her triplets spent 24 days in the NICU and are now thriving, mobile, and growing faster than Karen cares to admit.

Karen is now a mother of four, working by day as an IT Security Analyst, blogging by night at Chez Perky, and dreaming of having another child soon (yes, she’s insane).