Tuesday, August 12, 2008

Everything Counts in Larger Amounts

An original post for Bridges:

"They" tell you a lot after your babies die. They are the ones with experience, albeit rarely firsthand, on the matter. They are the counselors, the doctors, the "neonatal loss coordinators" (seriously), the authors of entire books on the subject. These are the dead baby experts.
They tell you that there are stages of grief and that you will likely go through them all, not necessarily in order (which begs the question why they even created the order). They tell you that it is not recommended to get pregnant again too soon. They describe the chances of a subsequent loss. They forecast how you may expect to feel, how your grief will change, lessen, over time. How babies, pregnancies, other reminders, may be painful (as if you needed a book to know this).

What they don't tell, however, is how much the things completely unrelated to loss, pregnancy and babies will hurt. They don't tell you how the most minor day to day disappointments will become magnified exponentially. They don't tell you that you are going to become a freak. They don't tell you that you can spend an entire day being normal, engaging in banter, functioning undetected in society, when a closed drive-thru will send you hurtling into an abyss of grief.

I have cried over traffic, I have bawled because my cat wouldn't snuggle with me, and I have refused to speak to DH for hours because he drove recklessly. I didn't used to be a mercurial person. One would think that suffering a tragedy such as the loss of a child (or two) would put life into perspective, perhaps lessen the impact of the smaller slights. It doesn't.

The other night, after a 12 hour workday, the one thing I was looking forward to was Taco Bell (don't judge - sometimes a little toxic cheese product just sounds too good). We got there and the drive thru was closed, so we went elsewhere. Thanks to delays and traffic it was another 20 minutes before we were home. DH sensed my disproportionate disappointment over the lack of chalupas, and told me that it wasn't that big of a deal. The next thing I knew I was prone on the bed, heaving sobs which I literally couldn't stop, no matter how hard I tried. Everything was just too much.It wasn't just the Taco Bell, although I'm sure in years to come DH will derive great pleasure telling people about the time I had a nervous breakdown because the drive-thru was closed.

It was (is) just everything, every extra hour I worked and didn't want to, every minute spent in traffic, every call that hadn't been returned. It's as if rather than putting things in perspective, losing our Doodles has thrown my gauges all out of whack - anything bad is very bad. A part of me is just screaming that it isn't fair, that I have already gone through losing my babies, I shouldn't have to deal with all this other crap on top of that, and so each minor inconvenience, disappointment, annoyance becomes another straw on the already severely injured camel's back.
So here I am, trying to nurse the camel back to health, and hoping someday it will be able to carry the load to which it had grown accustomed. I don't know how I'll do this, but I'm willing to give it a shot.

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

If this is your first time on this site, please see our comment policy.

Busted's Story

Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.

I used to have a blog - it was called "Turgid Prose." Some of my most memorable posts covered such diverse and important topics as how I thought Reba Mcintyre resembled a fraggle and why the Extra gum character in their commercials had a Scottish accent. I also had a sister site called "Primp My Ride" which covered beauty and fashion and my strong opinions with respect thereto. No one but my close friends and my husband read either one.

Eight months later without a period and several long weeks going back and forth from an RE's office, and I was feeling slightly less ironic, slightly less fashionista, slightly more in need of something real, something therapeutic, and so Busted Babymaker was born. I thought I was still being clever in my choice of a title, thought I was cute for dubbing myself "Busted". I wrote about IVF calendars, acupuncture appointments and being afraid of needles, but there was an edge of hope to the posts. All of a sudden strangers were reading, were cheering me on, and blogging became more than just entertainment.

When IVF#1 bestowed us with the jackpot of infertility, boy/girl twins, Phase III of my blogging career brought the cliched pregnancy blog. Baby names, nursery decor posts, showers - we had it all. There were some down moments, the abnormal genetic screening, the early threats of selective reduction (which happened naturally), but overall, despite all the requisite infertile woman's protests that this couldn't really be happening, we thought we were getting what we had always wanted.

March 25, 2008 inaugurated the current regime - pain central. On this day our sweet Doodles, Noah and Talia, were born too early at 23 weeks 3 days, and we lost them both. I now vacillate between (1) factual updates on my current medical situation (retained products, D&C, FET post-loss) when I can't think of anything to say other than "I miss my Doodles", and (2) long-winded laments, generally ending with "it's not fair." And suddenly so many readers have came out of the woodwork offering support and compassion, whether or not they can identify with our losses. So the idea of bringing awareness and emotional understanding through blogging is nothing new to me - but to create an entire space devoted to just that is definitely something new, and I'm honored to have been invited to be a part of it.

Oh yes, and I promise to do my best to reatin at least a sliver of that original irony and humor that used to be my bread and butter. If we can't laugh through the tears, what can we do?"

Monday, August 11, 2008

Returning to the Well

While the adoption community has many bridges and bridge builders, one can still find lot of sorrow, loss and hurt. The better members of the triad -- adoptees, firstparents and adoptive parents -- can empathize with each other, the better we can all ease the sorrow, loss and hurt. Posts on Bridges are meant to do just that: to help you experience another's light-bearing perspective.

A few weeks back, my friend Crystal offered to have my children come play at her house for a few hours. Rob had been out of town, and some down time for me sounded reealllly good.

It was a no-brainer. Responsible child watcher? Free time? Of course!

But I had to stop to think a moment.

Because Crystal is Tessa's firstmom.

"Is this weird?" I thought. "It doesn't feel weird. It should feel weird. Other people would find it weird. But I am definitely not sensing weird." The thoughts chugged through my head as I searched for some rain on my parade.

Click here to continue reading...


Lori is the contributing editor for Domestic Adoption. She writes daily at her main blog, Weebles Wobblog. She records her family's adoption story at Drama 2B Mama and reviews products at All Thumbs Reviews.

If this is your first time on this site, please see our comment policy.

Lori's Story

Lori is the contributing editor for Domestic Adoption. She writes daily at her main blog, Weebles Wobblog. She records her family's adoption story at Drama 2B Mama and reviews products at All Thumbs Reviews.

Once upon a time, Lori and her Prince Charming set out for the Land of Parenthood. But they encountered unexpected detours through Infertilistan and Adoptonia. Their perils and triumphs are told in Drama 2B Mama, a story with a beginning and an end.

Parenting and adoptive parenting brought new challenges and awareness. Lori began haunting cross-triad adoption boards to try to understand the full picture of domestic adoption (as much as one person can). Eventually, she made her way to blogging, and now details her quest to live, parent and love mindfully, attempting to really "get" the interconnectedness of All. Blogging -- observing her feelings, clarifying her thoughts, and reaching out to others to exchange answers and insights -- seems like the perfect way to do so. You can find her several times a week at Weebles Wobblog.

Sunday, August 10, 2008

Black Gaping Hole

I feel right now like I am in an upswing, moving a bit farther from the gaping hole, though I know it is right behind me, waiting. Recent distractions, newly (re)found, if tenuous, focus on my goals, on my husband, friends.

I fear the moment I feel the swing start to move downward, back toward the gaping hole, wondering about what new misery awaits me, which old misery will hurt most. How long it will take to climb back out of the gaping black hole, what I will need to do it, to let go again of my boys.

I left this comment on a post at Glow in the Woods, in response to a post by Niobe about feeling the wound of loss sort of, well, scar over. Be less raw.

When I wrote this post, I was feeling really good. Hopeful about the future. C had just completed 5 years of intense work and had successfully defended his dissertation. I was starting to get back into my own research and study. There was a minuscule chance that we could have conceived this cycle, and I was feeling okay, even hopeful about it. There was talk of getting a dog. There has been crazy weather here lately, with a big jump in temperature, severe thunder storms and threats of tornadoes. Electricity was literally in the air.

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So Dear and Yet So Far is a guest blogger on Bridges.

Friday, August 8, 2008

True View Friday Open Thread


We've done a lot of talking this week and now it's your turn to give us a glimpse into your world. Every Friday we will ask you to start the conversation by asking you two questions:

What do you believe?
and
What have you observed or noticed this week as you've walked through your world?

Your thoughts can either reflect inward, stating something you believe strongly or is commentary on your own experience or your thoughts can move outward, retelling something you've noticed or observed (a particular interaction with another person, the way you resolved a conflict, a wonderful connection) as you went through your week. You can also ask a question that is either directed towards all people or something you truly wish to understand about a community.

I like to think of this open thread similar to a two-dimensional Christmas advent calendar (so says the Jewish lady) where you peel back the little windows and you get a glimpse of the house underneath. Each comment is a small window in a world that is uniquely and wonderfully your own. And if you notice something amazing inside a comment, connect with the writer and let them know.

If you are stuck, try beginning your sentence with "I believe..." and then explain your reasons behind the thought.

In addition to providing a view into your world, please respond to a thought that someone else threw into the conversation by adding a (+) before the commentor's sign-off name and then adding your thoughts. In other words, when you open a new comment box, write

+lollipop goldstein--

and then your comment (eg. +lollipop goldstein--in asking us to present what we believed has opened a huge, messy can of worms*).

As I've already stated in the comment manifesto, all thoughts should be respectful. Points-of-view are, by definition, very personal and one person's thoughts are not meant to reflect everyone's thoughts within a community. Comments that attack another person, are hateful in nature, or are seen as simply picking a fight and not starting a conversation will be deleted.

So give us a glimpse into your world and teach us something new about your corner of the blogosphere. What do you believe? What have you observed? What do you want to ask? In other words, how do you view the world?


* This is probably true, but if we're not willing to talk out the hard topics, open our hearts to another person's world, listen, and build that bridge, there is little point to this site.

Thursday, August 7, 2008

An Open Letter

To the expectant mothers in my life (with love):

I know this is a very special time for you – a time filled with excitement, anticipation and unbounding love for your baby soon to enter the world. This time is for you – a chance to celebrate, to contemplate, to prepare. This is your moment to delight in the joy of expectancy, to embrace the promise of parenthood, to exude radiance. To rejoice in feeling life grow inside with every fluttering heartbeat, every kick. Soon you will enter the sacred sisterhood of women who become mothers, forever transforming their lives. Soon your arms will hold new life, as you bask in the warm glow of your child’s beaming eyes. Soon your heart will fill when you hear his/her laughter, the tight grasp around your finger. You will marvel at the wondrous little being you created out of love, in an act more natural than any in the world.

And yet. As you enter perhaps the most magnificent time in your life, we are finding our way through crisis, trying to navigate a life-altering journey with persistence and grace. We don’t know where it will lead us, how it will end. Our future is uncertain. I don’t expect many people to understand what we are going through. But I would hope that you would try to appreciate that it is real. It is crushing. It underlies and permeates every aspect of our lives, everything we do. As impossible as it is to imagine, as hard as it is to see, and as challenging as it is to live, it is our life and our story. And it is staggering. Such a primal urge, a natural instinct, a deep desire – unmet, unfilled, unlived…

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Luna is the contributing editor for Infertility. She writes daily at Life From Here: Musings from the Edge where she covers her infertility story from loss and IVF to her current journey through domestic adoption.

If this is your first time on this site, please see our comment policy.

Luna's Story

Luna is the contributing editor for Infertility. She writes daily at Life From Here: Musings from the Edge where she covers her infertility story from loss and IVF to her current journey through domestic adoption.

More than six years of infertility, and over four years of trying to bring home a baby…

5 surgeries, 4 IUIs, an IVF and FET, thousands of acupuncture needles, and countless herbal remedies…

One beautiful baby boy lost halfway to term at 21 weeks due to P-PROM…

And two loving people who would make wonderful parents…

This is my story.

I first realized I might be infertile more than 6 years ago, when I discovered that a massive fibroid was consuming my uterus. I was 32 years old, just finishing graduate school and beginning to think about starting our family. For years, I was infertile and didn’t even know it. When I learned this mass had been growing inside me for years and threatened my fertility, I was shocked. The thought had never occurred to me: I might not ever have children.

Suddenly I was facing major surgery and an uncertain future. My doctor offered hope, but there was a chance that I would never have a baby, at least without serious complications. We thought we were resolving our infertility problems before they even began. We had no idea how wrong we were.

After healing, we tried to conceive without success for over a year before seeking help. I was diagnosed with a variety of problems – recurrence of new smaller fibroids, a blocked tube, uterine and pelvic adhesions, hormonal imbalance (sometimes anovulatory cycles, short luteal phase). Later, we learned that my husband’s sperm, while plentiful and motile, had poor morphology, yet another problem to overcome.

With irregular cycles and a blocked tube, the chance of conceiving was greatly diminished. If I was able to conceive, a small fibroid was blocking my one open tube, and scar tissue from my uterine surgery further inhibited implantation. Even if I could overcome those obstacles, I had a significant risk of miscarriage or pre-term labor. If I made it to term, there was a risk of uterine rupture or loss. Plus, the fibroids would grow during the first trimester from elevating estrogen, resulting in an even higher risk pregnancy.

Yet somehow, in the fall of 2005, I beat the odds and became pregnant, without medical help, after a year and half of trying to conceive. It was probably a miracle, or at least a fluke. I didn’t even believe it. When I made it to the second trimester without any issues, we were elated. Our baby boy was perfect. We were blissful.

Then it all changed. In two weeks, he was gone.

I began spotting lightly just before 19 weeks. A week later, I woke up in a pool of wet.

Somehow I had suffered a substantial rupture of the amniotic sac. Preterm premature rupture of the membrane, or P-PROM, is rare and occurs in just 1-2% of all pregnancies (possibly with a 1 in 3 chance of recurrence). If the rupture did not heal, our baby boy would die. Life was not viable inside or outside. Our only chance was to wait and see. I was placed on strict bedrest for a week.

Despite all of our hopes and prayers, we lost our baby boy at 21 weeks, on February 3, 2006. Nothing could be done. Part of me died that day with him. I was lost, an empty shell.

Eventually, we were ready to try again. While nothing could replace our son, the only thought that kept me going was that we would try again. So we were back to the beginning…

After healing from several extensive surgeries, my RE encouraged us to try on our own in April 2007. I spent thousands on acupuncture and herbs. I changed my diet. We had already tried clomid for 3 months, which gave me nothing but a headache. We returned to the RE and tried 4 medicated IUIs before moving to IVF in November 2007 and an FET in March 2008. When that failed, our hope of a biological child was crushed. Our dream continued to elude us.

While I will always grieve the loss of our son and all that my infertility has taken from me, I am finally now facing the future and letting go…

After searching our hearts, we realized that becoming parents was more important than becoming pregnant. And so we have begun down a new path, as we pursue domestic open adoption with open hearts and minds. We know another long road still lies ahead, but we have finally taken the first steps on the next phase of our journey to parenthood. And so we move from hopeless to hopeful…

My blog life from here: musings from the edge began as an online journal to explore my infertility and document our IVF after nearly four years of lost hope. It also provided an outlet to process my lingering grief over losing my only child at 21 weeks gestation in February 2006. It now documents the aftermath of infertility as well as our pursuit of parenthood through domestic open adoption. Thank you for sharing our journey.

NOTE: this post was excerpted from a longer more detailed version of my journey on my blog.

Wednesday, August 6, 2008

What the Hell is the Matter With You

Mr. Y and I signed up for a new doctor in town. With the NHS, this means visiting the GP and doing a brief physical, getting an NHS number, etc. The form is straightforward-name, age, address, last time you saw a doctor, and a list of boxes that you check yes or no to, the standard things that your pen flies over and makes a tiny mark in a box.

Do you have or have you had heart trouble? No.
Do you have or have you had kidney trouble? No.
Do you or have you had cancer? Yes.
Do you smoke? No.

And then the one that stopped my pen. The one that made me think and made me wonder how to proceed.

Do you have a mental illness?

Do I have a mental illness? Mr. Y flew through his questions ticking no, and there I was, stuck. Do I have a mental illness...

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Helen is the contributing editor for Depression and Borderline Personality Disorder. She writes daily at Everyday Stranger where she also chronicles life with her twins, Nick and Nora.

If this is your first time on this site, please see our comment policy.

Helen's Story

Helen is the contributing editor for Depression and Borderline Personality Disorder. She writes daily at Everyday Stranger where she also chronicles life with her twins, Nick and Nora.

My name is Helen.

And I'm crazy.

Not crazy like going to work wearing a tutu, Wellingtons, and a Napoleon jacket with silver epaulets and pulling it off, even though really - that's crazy. I mean crazy as in spending a little time inside of a place where people get to spend the night in rooms that have restraints on the beds. I mean certifiably crazy, although I never got a certificate to hang on my wall.

In 2003 I was finally diagnosed with something called borderline personality disorder, accented with severe dissociation. This came one month after I went right over the edge and tried to commit suicide. I was briefly hospitalized. This was, unfortunately, not the first time I tried to kill myself, but it was most definitely my last.

The DSM IV criteria for BPD are:

1. Frantic efforts to avoid real or imagined abandonment. [Not including suicidal or self-mutilating behavior covered in Criterion 5]
2. A pattern of unstable and intense interpersonal relationships characterized by alternating between extremes of idealization and devaluation
3. Identity disturbance: markedly and persistently unstable self-image or sense of self.
4. Impulsivity in at least two areas that are potentially self-damaging (e.g., promiscuous sex, eating disorders, binge eating, substance abuse, reckless driving).[Again, not including suicidal or self-mutilating behavior covered in Criterion 5]
5. Recurrent suicidal behavior, gestures, threats, or self-mutilating behavior such as cutting, interfering with the healing of scars, or picking at oneself.
6. Affective instability due to a marked reactivity of mood (e.g., intense episodic dysphoria, irritability, or anxiety usually lasting a few hours and only rarely more than a few days).
7. Chronic feelings of emptiness, worthlessness.
8. Inappropriate anger or difficulty controlling anger (e.g., frequent displays of temper, constant anger, recurrent physical fights).
9. Transient, stress-related paranoid ideation, delusions or severe dissociative symptoms.

I went through many years of psychotherapy to help overcome my mental illness. I don't know if you can ever be cured, I think it's something we grow to live with. I have to make conscious efforts at some things, including avoiding falling into previous eating disorders I had, but while I don't think that you can ever be truly cured of a mental illness, it is something I have worked hard to overcome to be a better person, not only for myself but for my partner and my gorgeous babies, born to me after years of fertility treatment (and who are hanging in there with me while I battle postpartum depression).

There is a lot of stigma attached to being mentally ill. I'm here if you want to talk, because I know about the stigma. I know how bad it feels inside. And I know how amazing it can be to just have someone to talk to.

Tuesday, August 5, 2008

The Normal Child

An original post for Bridges:

It wasn’t so long ago that I was parenting a “normal” 4 year old. A “normal” bouncing-off-walls, vroombunctious, difficult to control, impulsive 4 year old, which probably should have tipped me off, but the parent is always the last to know, right? The truth is, we knew for a long time that something wasn’t quite… as it should be. J is clearly very intelligent. But he has such a hard time focusing, such a hard time controlling his impulses, and such a hard time controlling his temper tantrums. Clearly he wasn’t any happier about any of these things than we were. Yet, time and again, school psychologists, county therapists, teachers would tell us “no, he’s fine! He doesn’t need any services at all! Sure, he may have some issues, but clearly he doesn’t qualify!”

And so time passed without J getting the help he needed. Other mothers looked at me disapprovingly in stores. Can’t she just control her child? they must have been thinking. Well, no. No I could not “just control my child.” You see, it doesn’t work that way. As it happens, I would later find out, AD/HD isn’t caused by bad parenting (though, it also turns out, AD/HD can lead to bad parenting). You can’t “fix” AD/HD just by disciplining your child. You can’t force him to control himself through sheer act of will. It doesn’t work that way. Control my child, indeed. We were so far from control, it wasn’t funny.

Finally, at the end of May, we walked into Dr. S’s office, desperate, really, for some answers. Were we overreacting? Were we just bad parents? Was it just “normal” to have this many temper tantrums? Is it “normal” to be this impulsive? Was it just “normal” to be a moving so much it was like he was driven by a motor that never stopped? I mean, what do I know? He’s the first four year old I’ve ever parented, right? And we told the doctor everything, provided him with all of our reports, assessments, surveys, etc. He went and assessed J in the classroom, evaluated J in his office, read all of our reports and a few days before we returned to his office, we received his report in the mail with those four little letters: AD/HD (combined type).

Amazingly, though we’d jokingly called him “ADHD boy” before, it had seriously never really occurred to me before. And here it was, staring me in the face. An answer. A diagnosis. Could it be? And here, laid out in this report, was a plan of action for addressing this diagnosis. A plan for moving forward. I was on cloud nine, which might not be what you expect when receiving a diagnosis like that for your child, but it’s where I was at the time. Finally, someone was telling me I wasn’t losing my mind! And when we finally walked into the doctor’s office to discuss the report and he said to us, “A child with J’s profile would make even the best parent in the universe feel incompetent,” I was relieved, because, BOY did I feel incompetent! But this doctor was going to help us find the answers.

And slowly, we are finding answers. Medication is helping. Behavior Management is helping. The two together are magical. It’s a slow process. We don’t expect miracles overnight. But our goal is to help J be the best, most functional person he can be. AD/HD isn’t just hyperactivity as so many believe it is. It’s a true disability and it affects all aspects of a person’s life and the lives of the people around them. It turns out, parents of children with AD/HD suffer levels of stress equal to that of parents whose children suffer from Autism, Down’s Syndrome, and other disorders. Children with AD/HD are ostracized by their peers, and the parents of children with AD/HD are often left to cope on their own because their friends don’t understand, and don’t want to deal with their on-the-go child who can’t control their impulses. After all, their friends wonder, why can’t you just control your child?

It wasn’t so long ago that I was parenting a “normal” child. A “normal” child who was bouncing off walls and who couldn’t control his impulses. A “normal” child for whose faults my bad parenting was blamed. Now, just a few short weeks later, I’m parenting a child with AD/HD. A child with special needs. He’s the same child, but now, now he’ll be able to get the help he needs. Those four little letters make all the difference in the world, don’t they?

Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

If this is your first time on this site, please see our comment policy.

Karen's Story

Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.

A five-year veteran of infertility, Karen is the very lucky mother to a vroombunctious preschooler named J, and infant triplets: Sam, Ellie and Abby. While struggling with infertility, Karen and her husband were given the opportunity to take in a wonderful 13 month old boy, J, for “maybe a year, maybe more, maybe forever, we’re not really certain how long, but probably just a year.” Though Karen wasn’t sure how she would ever be able to give up a child after a year, she knew that if she couldn’t give a child a loving home for a year, who would? Four years later, J is still with Karen and is just as much a part of the family as if he had been born into the family. No legal document or biological tie would change that.

While parenting J and working full time, Karen and her husband continued to pursue fertility treatment, in hopes of expanding their family even more. Several years, many tests, 6 IUIs, and about $20K later, Karen found herself pregnant with triplets. Though she had long said that anything over twins was her doctor’s problem, she quickly became attached to the growing little monsters in her belly and she carried them to 33 weeks despite preterm labor starting at 17 weeks and a whole host of other issues. Her triplets spent 24 days in the NICU and are now thriving, mobile, and growing faster than Karen cares to admit.

Karen is now a mother of four, working by day as an IT Security Analyst, blogging by night at Chez Perky, and dreaming of having another child soon (yes, she’s insane).

Monday, August 4, 2008

Cheated

This post probably isn’t fit for anyone to read. It’s something I’m trying to work through, emotionally and intellectually. It feels ugly to me and I’m more than a little ashamed of it. If I don’t get it written down, though, I’ll just keep dwelling on it. Sure, I don’t have to publish it, but my goal here has always been blatant ugly honesty. Just don’t read it, ok?

I feel cheated out of too many things. I was cheated by infertility, denied the ability to conceive a child without major medical intervention. I’ve written about this before and I’d more or less managed to come to terms with my feelings about it. Until now. Now, it’s one more tic mark in the column of things I feel cheated out of.

I was cheated out of the pregnancy experience. Yes, there were a few incredible moments that I’ll never forget, but they’ll always be shadowed by the vomiting and the illness. The second trimester, when things were supposed to improve will forever be lost in the fear of the gallbladder surgery and then the membrane rupture. I had one good week in all of that…one week of feeling good. One week of no vomiting, of a healthy, pregnant appetite. One week.

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Allison is the contributing editor for Neonatal Death. She writes daily at Our Own Creation where she chronicles not only the life and death of her twins, Lennox and Zoe, but her world beyond.

If this is your first time on this site, please see our comment policy.

Allison's Story

Allison is the contributing editor for Neonatal Death. She writes daily at Our Own Creation where she chronicles not only the life and death of her twins, Lennox and Zoe, but her world beyond.

I'm supposed to be telling you who I am and that's not an easy question. I suppose I'll start with the basic labels. I was born in 1971. I grew up in Raleigh,NC, went to college in Asheville, moved to Fort Worth, TX in 1998 and have been here since (with the exception of a 12-month detour to Boston). I've been married to Shannon for just shy of nine years.

I'm a voracious reader. I love to cook and garden. I'm kinda granola-hippy-crunchy. I like to play video games. I've been a nanny, a landscaper, a waitress, the customer service manager for an internet dating site, and a researcher. I have the sense of humor of a 12 year old boy. And my newest label? I'm a mother. I just don't have my children anymore.

We decided to try to start our family in 2005. We knew it wouldn't be easy. I was diagnosed with PCOS and we moved through the stages of infertility treatment; clomid, IUI, IVF. On August 16, 2007, I learned that our frozen embryo transfer had worked and I was pregnant. Shortly after that, we found out it was twins. At 17 weeks, I had surgery to remove my gall bladder. At 22 weeks, I was admitted to the hospital with a premature preterm ruptured membrane and put on bed rest. At 24 weeks, at 2:35am January 3, 2008, I delivered Lennox and Zoe.

Lennox's membrane was the one that had ruptured and every moment of the almost three days he lived was a struggle for him. He died in my arms on January 5, 2008 from a collapsed lung. Zoe was a fighter. The night of January 23, they moved her from the most critical care room in the NICU to the long term room. On January 24th, her heart stopped beating. We don't know the cause. The autopsy showed no reason for it. Her official cause of death is extreme prematurity.

Since then, I have struggled with being a mother with no children, and with trying to figure out where we go from here. Grief has become a constant in my life now. Normal has a new definition for us. We are just taking our first scary, tentative steps towards trying to get pregnant again.

I started blogging when we started going to the fertility clinic. Originally, the blog was to keep my family in the loop since we live so far apart and they wanted to know what was going on. As we got further into it, I started writing to share what we experienced and learned. I may be shy, but I'm not easily embarrassed and I figured if I was busy googling to try to learn more about the process, so were others. I hoped my willingness to write about all that we were going through might help someone else. It also meant that I got to hear, "I know what you mean! The same thing happened to me." and I realized how much comfort there was in knowing that someone out there was going through the same thing. Blogging has been a way for me to connect, to vent, to remain sane in the face of overwhelming emotions.

Monday, July 28, 2008

Bridges

The spark for this site actually came from reading infertility blogs that became cancer blogs. Several bloggers who were building their families discovered cancer along the way and their trying-to-parent journals morphed into a chemo and radiation journey. As I continued reading their blog, I stepped over the information I intellectually knew about cancer into emotional territory: not just that you lose your hair from chemo, but how it feels to wake up and see those strands across your pillow. And I like to think that I now understand a little bit better.

There are a lot of sites that are built to both build community and share support and resources intercommunity. Yet I couldn't find any that were bridges for the outsider: those who knew someone affected and wanted to understand yet didn't know a way in or those who had gained empathy from their own experience and wanted to better understand someone else. Hence the birth of Bridges.

The tagline of the site is "taking the taunts off of the playground one post at a time" and that is what we hope to accomplish with this online magazine and support site. As parents become better educated, they will pass those lessons down to their children who in turn will foster more understanding with the next generation.

This site is about reading with an open heart. This site is about leaving black-and-white at the door and slipping into grey. This site is about listening and speaking. This site is about education and empathy. We are a consortium of compassionate bloggers who are looking to use writing to
educate, tell a story, bring awareness, and build community. We would like you to join along too.

In order to fully utilize this site, you'll need to keep your eyes in several places. In the center are blog posts that stand as glimpses into an experience. Our contributing editors cull the posts from their personal blogs as well as others in the community (and there is information about submitting posts on that page). There is no set posting schedule and we hope you approach reading this blog as you would produce from a CSA rather than a food store. When you purchase your produce at a food store, you get exactly what you want; which is certainly nice, but your world doesn't expand at all. With a CSA, you may end up with vegetables you'd never dream of using and discover you love. It is a palate-opening experience and we hope the tastes of community you receive from this site broaden your understanding of the world.

The other places are the two sidebars. We are still building this site and it will never stop growing. We are keeping our own blogroll of compassionate bloggers who write specifically on a topic so you can find the stories you're seeking. If you would like your site added, there is information about being added to the blogroll on the blogroll itself. It is opt-in, meaning; we will not place you on the blogroll without your explicit instruction. Being on the blogroll means that you may be contacted by the media when they are doing a story on a specific topic.

We also have external blogrolls that are kept intercommunity that you can access through the sidebars, links to helpful sites that serve as intercommunity consortiums on a topic, and community-based projects. As well, of course, as bridges that bring us together. We want to hear suggestions and requests. Please send them currently to Melissa. We are inclusive and if your community is not yet listed, please place it on the site.

We are stronger together rather than apart. Therefore, please lend your voice, get involved, and change the world.

Saturday, July 26, 2008

Bridges

An awareness consortium of compassionate bloggers.

More information coming soon.

Sunday, July 20, 2008

The Awareness Blogroll

Our blogroll is open to everyone who is a compassionate blogger who uses their blog to educate, tell a story, bring awareness, and/or build community. If you would like to be added, please send an email to Melissa with your blog information (name and url) as well as which category and parenthetical description would be best. If a category does not yet exist for your blog, please write and suggest one. Our blogroll is always growing and changing.

Adoption/Infertility/Loss (ALI)
Cancer
Allergies
  • Add Yourself
Mental Illness
General Health
  • Add Yourself
Parenting Children with Special Needs
GLBT
Body Image
Addiction
Religion
  • Add Yourself

Contributing Editors

These are the current contributing editors for Bridges. We are constantly adding new categories so please suggest one if it is missing. If there is an opening for your category and you wish to be a contributing editor, please write Melissa. If you have a post you want to have considered for Bridges, please contact the appropriate editor for your category through their personal blog. If your category does not have a contributing editor, please email your submission to Melissa.

Adoption/Infertility/Loss (ALI)

Adoption (Domestic and International)

Lori is the contributing editor for Domestic Adoption. She writes daily at her main blog, Weebles Wobblog. She records her family's adoption story at Drama 2B Mama and reviews products at All Thumbs Reviews.






Crystal is the contributing editor for the Birth/Firstparent Perspective. She parents a pre-teen son and has an open adoption with her daughter's family. She writes at Crystal's Way.






Erin is one of the contributing editors for International Adoption. She writes daily at PCOS Baby where she chronicles life with her children and parenting after adoption from Ethiopia.






Stacey is one of the contributing editors for International Adoption. She writes daily at Is There Any Mommy Out There? where she discusses life with her adoptive, multiracial family.






Andy is the contributing editor for the Adoptee Perspective. She is also a mother through adoption. She writes daily at Today's the Day.







Infertility

Melissa is the editor of Bridges and contributing editor for Parenting after Infertility. She writes about infertility at her main blog, Stirrup Queens, as well as at the daily Lost and Found and Connections Abound. Her writing can also be found at BlogHer.





Kymberli is the contributing editor for Surrogacy (Surrogate Point-of-View). She writes daily at I'm a Smart One where she chronicles her life as a gestational surrogate after her own struggle with infertility.






Luna is the contributing editor for Infertility. She writes daily at Life From Here: Musings from the Edge where she covers her infertility story from loss and IVF to her current journey through domestic adoption.






Loribeth is the contributing editor for Living Child-Free after Infertility or Loss. She writes daily at The Road Less Travelled where she tells the story of her daughter as well as life after the stillbirth and infertility.





Kami is the contributing editor for Donor Eggs. She writes daily at The Other Side where she covers life with her new daughter, LB, the little butterfly.






Tabi is the contributing editor for Surrogacy (Intended Parent). She writes and posts images at The ART of Being Infertile.







Jess is the contributing editor for Donor Insemination. She writes daily at Life in the White House.







Loss


Busted is the contributing editor for Loss. She writes daily at Busted Babymaker where she tells her infertility story as well as the story of the Doodles, her boy/girl twins (Noah and Talia) who were born at 23 weeks due to placental abruption.





Allison is the contributing editor for Neonatal Death. She writes daily at Our Own Creation where she chronicles not only the life and death of her twins, Lennox and Zoe, but her world beyond.






Julia is the contributing editor for Recurrent Pregnancy Loss. She writes daily at Life After Infertility and Loss where she covers all of her children--the ones who are here and the ones who are gone.






Aurelia is the contributing editor for Early Pregnancy Loss. She writes daily at Aurelia Ann. She provides "thoughts-written-out-loud" in words and pictures.






Current Openings in Adoption/Infertility/Loss:
  • Donor Insemination
  • Adoptees
  • Birthparents
  • Donor Conceived
  • Single Parent by Choice
Cancer

WhyMommy is the contributing editor for Inflammatory Breast Cancer (IBC). She writes at Toddler Planet and heads up Team WhyMommy which has spread the word about IBC. She also blogs at DC Metro Moms Blog, Women in Planetary Science Blog, and, her latest project, Mothers With Cancer.




Laurie is the contributing editor for Breast Cancer. She writes at Not Just About Cancer and she is also a contributor at Mothers With Cancer. Her book, I'm Not Done Yet, is due out in Spring 2009.






Current Openings in Cancer:
  • All cancer categories are open; suggest one
Parenting Children with Special Needs

Robin is the contributing editor for Asperger Syndrome. She writes daily at her personal blog, My Life As It Is, where she writes about her son Adam, Asperger and autism awareness. You can also find her at DC Metro Moms.






Karen is the contributing editor for ADHD. She writes daily at her personal blog, Chez Perky, where she covers not only life with her vroombunctious preschooler, but also triplets.






Miryam is the contributing editor for Bleeding Disorders. She also covers Allergies. She also writes at her personal blog, Breeding Imperfection.






Psychmamma is the contributing editor for Special Medical Needs. She writes at Psychmamma where she covers life with Jenna, her "spunky little two year-old who was born with a triple intestinal atresia." Her blog is also the home of Special Needs Sundays.





Stacie is the contributing editor for Prematurity. She writes regularly at her personal Heeeeere Storkey, Storkey, where she writes about her life, family, and most especially, her twin boys, Sh.awn and Ja.son, who were born at 28 weeks and 3 days due to PPROM.





Current Openings in Parenting Children with Special Needs:
  • Suggest One
Addiction

Cecily is one of the contributing editors for Alcohol and Drug Addiction. She writes daily at her personal blog, Uppercase Woman, where she covers not only her 12 years of sobriety, but life with Tori, writing, and all things feminist.





Topcat is one of the contributing editor for Alcohol and Drug Addiction. She writes daily at Indisputable Topcat where she is parenting after infertility and navigating her husband's cancer.






Becky is the contributing editor for Family Perspective on Addiction. She has recorded part of her story at A Walk in Our Shoes and A Daughter's Journey.






Current Openings in Addiction:
  • Gambling
  • Sex
  • Smoking (trying to quit)
Mental Illness

Helen is the contributing editor for Depression and Borderline Personality Disorder. She also covers Postpartum Depression. She writes daily at Everyday Stranger where she also chronicles life with her twins, Nick and Nora.





Lil is also a contributing editor for Postpartum Depression. She is beginning to write about her experience with prenatal and postpartum depression at There is a Crack in Everything. She also blogs about daily life at From Maiden to Mother.







Current Openings in Mental Illness:
  • Manic-Depression
  • Seasonal Affected Disorder
  • Schizophrenia
  • Please suggest more

General Health

Calliope is the contributing editor for Alzheimer's Disease. She writes daily at Creating Motherhood, where is walks the line between taking care of the older generation while creating the next generation. She lives with and cares for her grandmother who has Alzheimer's.





Neenie is the contributing editor for Bedrest and Preterm Labour. She writes daily at Swim where she covers life with her son who started to come out at 25 weeks, but luckily swam around inside a while she spent 2 1/2 months on hospital bedrest.





Current Openings in General Health:
  • This is a broad category containing a multitude of illnesses and conditions not covered by other categories; suggest one
GLBT

Liza is one of the contributing editors for Parenting. She also writes daily at Liza Was Here and is the founder and a contributor at Lesbian Family.







Lesbian Dad is one of the contributing editors for Parenting. She also write in many other places including her personal blog, Lesbian Dad, and Lesbian Family.






Little Miss Hopeful is one of the contributing editors for Family Building. She also writes at Life Without Caden, which is about life after the death of her son, Caden.






Current Openings in GLBT:
  • Family Building
  • Parenting
  • Relationships
  • Suggest One
Families and Relationships

Jen is the contributing editor for Child of a GLBT Parent. She writes about her family at Kids of Queers.







Current Openings in Families and Relationships:
  • Divorce
  • All Categories Open; suggest one
Body Image

Current Openings in Body Image:
  • All Categories Open; suggest one
Allergies

Current Openings in Allergies:
  • All Categories Open; suggest one
Religion

Current Openings in Religion (editors should write extensively on aspects of their topic):
  • Judaism
  • Catholicism
  • Protestantism (any sect)
  • Islam
  • Hinduism
  • Buddhism
  • Wicca
  • Please suggest more...
Deaf Culture


Current Openings in Deaf Culture:
  • All Categories Open; suggest one

Bridges is always open to adding new categories and new editors--suggest one! Topics should be subjects that are misunderstood by outsiders and poorly portrayed in the media. In other words, if you've always gotten the sense that it wouldn't make great cocktail party conversation, it definitely belongs here on Bridges.

About Bridges

Who Are We

Bridges is an awareness consortium of compassionate bloggers who are using writing to educate, tell a story, bring awareness, and build community. Our contributing editors all keep personal blogs and our blogroll serves as a cross-section of community where you can find various stories on a plethora of topics.

We are people who spend more time listening than speaking; more time learning than educating. Our ears, eyes, and hearts are open to new ideas. We want our vision of the world changed by what we read. We are willing to be engaged and challenged when done so politely from those with an open heart who would also like to learn. We give support where it is needed and step outside our small niche in the blogosphere in order to lend our ears and voices to other causes in exchange for mutual support.

Contributing Editors

Our contributing editors are voices from their community within the blogosphere. Each keep a personal blog where they cull articles. They also may choose to post (with permission) an article from another blogger in their community. If you would like to be a contributing editor, please check the editor list to see if there is an opening for your community. If your community is not listed yet on the contributing editors page, please suggest a new category by writing Melissa.

Blogroll

Our blogroll is open to everyone who is a compassionate blogger who uses their blog to educate, tell a story, bring awareness, and/or build community. If you would like to be added, please send an email to Melissa with your blog information (name and url) as well as which category would be best. If a category does not yet exist for your blog, please write and suggest one. Our blogroll is always growing and changing.

Questions

General questions should be directed to Melissa.

Comment Manifesto

Blogs are about holding a conversation. The comment box is where you respond to another person's thoughts. If your comments are getting excessively long or you wish to host them on your own site, please place the url of your post in the comment box with an indication that your thoughts are hosted on your own blog.

You may place comments either on the original post (in the case of a previously published re-run) or on the Bridges post. Editors hold the right to reprint comments on their original post that are left on Bridges (in other words, enter them manually on their own blog in the comment section so that all comments can be kept with the single post). They also have the right to delete a comment that does not fit our guidelines.

Our guidelines: We are always open to conversation, arguments, and questions. We are not open to personal attacks, hate speech, or fighting for fighting's sake because these things go against the point of this site which is to listen with an open heart and attempt to understand another person's world in order to build bridges between us. Comments are removed at the discretion of editors. If your comment has been deleted, you have the reason why it has been deleted and we respectfully ask you to not post an argument about the removal. At the same time, because comments instantly go live, there may be times that an inappropriate comment is left up for several hours. We also reserve the right to leave up a comment that another person may see as being hateful or attacking. We err on the side of inclusivity and try not to limit speech. If you have a problem with a specific comment left on the site and would like to explain why you are requesting its removal, please write Melissa.

Points-of-view are, by definition, very personal and one person's thoughts are not meant to reflect everyone's thoughts within a community. Speak solely for yourself and understand as you listen that you are hearing a single person's words.

Now jump into the conversation.